While visiting Boston on business, I learned some shocking news this past weekend. My good friend Sonia was diagnosed with Acute Myelogenous Leukemia (AML) about 10 days ago. She is currently undergoing chemotherapy. She is 24 and in urgent need of a bone marrow transplant. I am still in shock and having a hard time absorbing this. Since I have known her, I cannot imagine her as being anything other than the cheerful, always smiling, bollywood-movie-loving, happy and positive person that I have known her to be. She is an active member of the South Asian community and many may recognized her contributions as a board member of NetSAP Boston. I pray she finds a donor soon.
Team Sonia – Sonia’s brother Sumit Rai, family and friends are organizing drives today and in the next few weeks. Please take the time to help spread the word about the drives and join the NMDP registry if you have not already done so. You can visit www.curesonia.org, or visit their Facebook page.
As you may be aware from our previous posts on the topic, the National Bone Marrow Registry (NMDP) is in dire need of more ethnic donors. South Asians, as well as any minority, and especially people of mixed ethnicity are needed. Sonia is currently receiving excellent care at Massachusetts General Hospital in Boston, but in order to survive beyond the next few months, she requires a bone marrow transplant. Most matches occur within ethniticty and increasing the number of South Asians registered as potential bone marrow donors will help Sonia as well as many others who are searching.
Among the 7 million registered donors currently, approximately, only 2% are South Asians. Ethnic Minorities have a 30-40% chance of finding a match from the existing NMDP registry. Caucasians have an 80% chance of finding a match from the existing NMDP registry [link]. Continue reading