{"id":4551,"date":"2007-07-05T23:28:14","date_gmt":"2007-07-06T04:28:14","guid":{"rendered":"http:\/\/sepiamutiny.com?p=4551"},"modified":"2007-07-05T21:51:37","modified_gmt":"2007-07-06T02:51:37","slug":"in_nyc_this_wee","status":"publish","type":"post","link":"http:\/\/sepiamutiny.com\/blog\/2007\/07\/05\/in_nyc_this_wee\/","title":{"rendered":"In NYC This Weekend?  GO.  If Not, Read on&#8230;"},"content":{"rendered":"<p><center><a href=\"http:\/\/www.sepiamutiny.com\/sepia\/archives\/helpVinay_NYC-3.jpg\"><img loading=\"lazy\" alt=\"helpVinay_NYC-3.jpg\" src=\"http:\/\/www.sepiamutiny.com\/sepia\/archives\/helpVinay_NYC-3-thumb.jpg\" width=\"345\" height=\"475\" \/><\/a><\/center><\/p>\n\n<p><center><em>Click to enlarge.<\/em><\/center><\/p>\n\n<p>Many of you have offered your good wishes for <a href=\"http:\/\/www.helpvinay.org\/dp\/\">Vinay&#8217;s<\/a> health&#8211; some of you have even taken the next step and become part of the database.  Others&#8211; especially when they read these posts I keep beating you about the head (and hopefully heart) with&#8211; are reminded of their intention to get registered; <strong>they think, oh, I&#8217;ll make it to <a href=\"http:\/\/www.helpvinay.org\/dp\/index.php?q=event\">the next drive<\/a> and do it then<\/strong>.<\/p>\n\n<p>A very special opportunity to get swabbed is available to desis in what I still think of as the brownest city of them all&#8211; even if it&#8217;s a big apple and not a mango.  <strong>This Sunday, in NYC, from 4-8 pm, show up at Pianos and not only will you increase the possibility of saving someone&#8217;s life, you may get to meet the man who has inspired this incredible campaign to paint the national database sepia<\/strong>.  Vinay might be there.  \ud83d\ude42  Please wish him a happy second wedding anniversary (July 3) for me, if you go.<\/p>\n\n<p>If you can&#8217;t attend or you are not in the NYC area, <em>please<\/em> harass your loved ones.  Get every South Asian person you know to consider becoming a committed donor; a list of the drives which are happening all over the country is <a href=\"http:\/\/www.helpvinay.org\/dp\/index.php?q=event\">here<\/a>. <strong>While my constant posting about Vinay may insinuate otherwise, this is about <u>all<\/u> of us, not one of us<\/strong>. It&#8217;s scary to consider how close this can hit to home; I&#8217;ve lost two family members in three years <a href=\"http:\/\/www.helpvinay.org\/dp\/index.php?q=node\/143\">to this disease<\/a>.  I may not know Vinay, but I don&#8217;t have to, to believe in what he and his team are going to do.<\/p>\n\n<p>::<\/p>\n\n<blockquote><strong>Which diseases can be treated by marrow transplant?<\/strong><\/blockquote>\n\n<blockquote>Over 70 diseases including the leukemia\u00e2\u20ac\u2122s, aplastic anemia, severe combined immune deficiency, sickle cell anemia and radiation poisoning are treated by marrow transplant. <\/blockquote>\n\n<p>::<\/p>\n\n<blockquote><b>What exactly is a marrow \/ stem cell transplant?<\/b><\/blockquote>\n\n<blockquote>Simply, it is the replacement of diseased blood stem cells from a health donor infused into a patient\u00e2\u20ac\u2122s vein just like a blood transfusion. Within four to six weeks the transplanted marrow \/ stem cells begin to produce normal blood cells in the patient.<\/blockquote>\n\n<p>::<\/p>\n\n<blockquote><b>Who can become a marrow \/ stem cell donor?<\/b><\/blockquote>\n\n<blockquote>You must be between 18 and 60 years old, have no history of hepatitis, heart disease, cancer or AIDS, and sign a consent form allowing the Registry to include your HLA tissue type in its confidential files for future matching. See NMDP link below for more details: Donor information (NMDP) and Donor Eligibility Guidelines. <\/blockquote>\n\n<p>::<\/p>\n\n<blockquote><b>How do I know if I am a match?<\/b><\/blockquote>\n\n<blockquote>If you are found to be a possible match with a patient, the center in which you tested and\/or the NMDP will contact you immediately and give you the option of proceeding to the next level\/s of testing to insure final HLA compatibility with the patient.<\/blockquote>\n\n<p>::<\/p>\n\n<blockquote><b>Who pays for these tests?<\/b> <\/blockquote>\n\n<blockquote>Not you &#8211; the patient or his\/her medical insurance does.<\/blockquote>\n\n<!--more-->\n\n<blockquote><b>What happens if I am a match?<\/b><\/blockquote>\n\n<blockquote>If the match is confirmed the transplant can be scheduled but only with your legal consent after in-depth counseling and a thorough physical examination.<\/blockquote>\n\n<p>::<\/p>\n\n<blockquote><b>Okay, now tell me how my marrow is collected?<\/b><\/blockquote>\n\n<blockquote>Two procedures are available for stem cell collection.<\/blockquote>\n\n<blockquote><em>1. Peripheral blood stem cell collection<\/em><\/blockquote>\n\n<blockquote>(MOST current and common method)\u00e2\u20ac\u00a6..You are given small injections of Neupogen\/Filgrastin for 3 to 5 days to force your marrow to overproduce marrow or stem cells which are then released into your circulating blood. The stem cells are collected by removing blood from a vein in your arm, passing it through a filter system, which collects the stem cells and returns the remaining blood to you\u00e2\u20ac\u00a6a 2 to 3 hour procedure.<\/blockquote>\n\n<blockquote><em>2. Marrow harvest\u00e2\u20ac\u00a6.<\/em><\/blockquote>\n\n<blockquote>You are given light general anesthesia so that you feel nothing during the procedure. Only 2% to 3% of your marrow is withdrawn from the large crest of your hipbone through special sterile needles .. a 60 minute procedure. You may go home the same day.<\/blockquote>\n\n<p>::<\/p>\n\n<blockquote><strong>Are there any risks or side effects?<\/strong><\/blockquote>\n\n<blockquote><em>1. Peripheral blood stem cell collection (PBSC)<\/em> &#8230;..You might experience some flu- like symptoms, slight bone pain, or a feeling of heaviness during the injections. These discomforts usually disappear soon after the collection is completed. This will be discussed in detail with you.<\/blockquote>\n\n<blockquote><em>2. Marrow harvest&#8230;..<\/em>Other than the remote chance of a reaction to anesthesia or an infection the risks are minimal. This will be explained to you in detail. You may experience some soreness in the lower back.<\/blockquote>\n\n<p>::<\/p>\n\n<p>If you were in Vinay&#8217;s shoes, you would want people to move beyond their fear and inertia.  You would hope that they&#8217;d help, if they could.  If this were your girlfriend, your boyfriend, your little brother or sister, your Dad&#8230;you&#8217;d be hoping and praying for someone to be a match. <strong>Well, you could be the match<\/strong>.  And everyone who needs you IS someone&#8217;s sibling, parent, friend, beloved.  This is the greatest expression of &#8220;community&#8221; I can think of&#8211; lives are at stake and we rally around those who need us, to support and heal them. If you are interested, please get to a drive in your area&#8230;while our enthusiasm and passion are infinite, our time is not.<\/p>\n\n<p>Help?<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Click to enlarge. Many of you have offered your good wishes for Vinay&#8217;s health&#8211; some of you have even taken the next step and become part of the database. Others&#8211; especially when they read these posts I keep beating you &hellip; <a href=\"http:\/\/sepiamutiny.com\/blog\/2007\/07\/05\/in_nyc_this_wee\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[39,25],"tags":[],"_links":{"self":[{"href":"http:\/\/sepiamutiny.com\/blog\/wp-json\/wp\/v2\/posts\/4551"}],"collection":[{"href":"http:\/\/sepiamutiny.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/sepiamutiny.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/sepiamutiny.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/sepiamutiny.com\/blog\/wp-json\/wp\/v2\/comments?post=4551"}],"version-history":[{"count":0,"href":"http:\/\/sepiamutiny.com\/blog\/wp-json\/wp\/v2\/posts\/4551\/revisions"}],"wp:attachment":[{"href":"http:\/\/sepiamutiny.com\/blog\/wp-json\/wp\/v2\/media?parent=4551"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/sepiamutiny.com\/blog\/wp-json\/wp\/v2\/categories?post=4551"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/sepiamutiny.com\/blog\/wp-json\/wp\/v2\/tags?post=4551"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}